Why Alzheimer’s Is Close to My Heart

Movie and TV star Lea Thompson puts hearth and home first, in honor of the condition that took both of her grandmothers and taught her the secrets to serenity.

By
Gina Roberts-Grey

Lea Thompson’s life is one big juggling act. Besides starring in the ABC Family series Switched at Birth, the veteran actress has roles in many films recently, including J. Edgar with Leonardo DiCaprio. And that’s on top of her roles as wife of director Howard Deutch (they’ve been married for more than two decades) and mother of daughters Madeline and Zoey.

Lea, 52, doesn’t let it rattle her though. Her skills as an actress—she moves easily between drama and comedy—come in handy when life throws a curveball. And one of the most heartbreaking ones came just as she was hitting star status in the ’80s megahit Back to the Future. While playing her comedic role as Michael J. Fox’s mother by day, off the set she was helping her own family come to terms with the devastating news that both her grandmothers had Alzheimer’s disease. Sadly, the script didn’t end there.

“My stepfather and father-in-law also had Alzheimer’s, so unfortunately, I have quite a lot of experience with the condition,” confides Lea.

And rather than losing herself in the world of Hollywood, Lea stayed strong for her family by taking refuge where she feels best: with them. Here, she shares the wisdom that helped her weather the storm with acceptance and grace.

Talk it out. “Years ago, when my grandmothers had Alzheimer’s, there was little acceptance of the condition. Thankfully, today there’s much more community support for caregivers,” says Lea, who does fund-raisers for Alzheimer’s research. “Family members shouldn’t ever feel embarrassed to discuss it. That’s a stress they don’t need.”

Listen to your heart. Lea struggled with guilt when her grandmothers were battling Alzheimer’s. “I feel like I should have visited more. I wanted to, but I didn’t, and I still feel bad about that,” she reveals. “Families are told, ‘Don’t bother going, they don’t know you’re there.’ ”Her thought? “If you want to visit a loved one with Alzheimer’s, don’t let anything keep you from doing so,” she says. “But if taking a break feels right, do that. Doing what feels good—such as visiting, taking a walk or spending time with friends—are little ways family members can take care of themselves.”  

Accept help.Caregivers are emotionally and physically exhausted. It’s one of the hardest jobs you’ll ever have,” notes Lea. Whenever she could, Lea helped both her mother and mother-in-law. “I was there to talk, listen, pitch in and do whatever was necessary to care for them, the caregivers.” Joining support groups helped, too. “It’s comforting to know you’re not the only one going through this very tough time.”

Heal with humor. “It’s understandable to get frustrated,” says Lea. “You want your loved one to ‘go back to normal,’ and it’s hard to accept that’s not going to happen.” When Lea’s stepfather was slipping away, she coped by taking a laughter break. “I would watch a funny movie, listen to comedy or look for little humorous events during the day. Anything that makes you smile helps relieve tension.”

Find meaning in the moment. “Even though my stepfather couldn’t put words together, there were special moments when we spent time together or I helped my mother care for him,” she says. In some ways, her experience mirrored the hopeful message found in Back to the Future: “It’s a movie that’s funny, well-crafted and has an interesting premise: that changing how you live your life can totally change the outcome. It’s life-affirming.” 

 

 

 

 

 

Published
June 2013